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Navigating Resilience: A Mother's Journey in Caring for a Child with Duchenne Muscular Dystrophy and Intellectual Disabilities

Volume: 165  ,  Issue: 1 , January    Published Date: 19 January 2025
Publisher Name: IJRP
Views: 2  ,  Download: 4 , Pages: 35 - 46    
DOI: 10.47119/IJRP1001651120257467

Authors

# Author Name
1 Lovely A. Mamolo
2 Daniella Lois Marie I. Gratuito
3 Nelly-Vee I. Guirre
4 Jovylene L. Coderes
5 Mary Grace Rivera
6 Wenefredo Cagape

Abstract

The emotional and practical experiences of a mother raising her son with Duchenne Muscular Dystrophy (DMD) and intellectual limitations are looked at in this case study. It investigates her coping techniques, support systems, and the effects of caregiving on her personal life. The study discovers themes of self-care, social relationships, grief management, and resilience through in-depth interviews examined utilizing the Colaizzi method.

Keywords

  • duchenne muscular dystrophy
  • intellectual disability
  • caregiving
  • emotional resilience
  • family dynamics