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VOICES OF INCLUSION: EXPERIENCES OF PARENTS HAVING CHILDREN WITH AUTISM SPECTRUM DISORDER

Volume: 146  ,  Issue: 1 , April    Published Date: 01 April 2024
Publisher Name: IJRP
Views: 138  ,  Download: 43 , Pages: 134 - 140    
DOI: 10.47119/IJRP1001461420246241

Authors

# Author Name
1 Jeeve C. Bonjibon
2 Regine Phoelea Mae F. Del Carmen
3 Bladelyn S. Sumugat

Abstract

This research study aimed to explore the experiences of parents who have children with Autism Spectrum Disorder (ASD). Being major players in their childrens life, parents of children with ASD are essential in promoting their participation in society and fighting for their rights. It aimed to provide experiences and insights into the challenges and triumphs of raising children with ASD highlight the strengths and coping mechanisms of parents with children with ASD and, emphasize the importance of parental advocacy for inclusion. It utilized Narrative Inquiry approach through in-depth interviews using researcher-made interview guide questions. Four (4) parents were interviewed and through thematic analysis the results showed four key themes that encapsulated the parents journey: navigating the diagnostic process, overcoming barriers to inclusion, embracing strengths and individuality, and advocating for a more inclusive world. These themes highlighted the challenges, triumphs, and advocacy efforts of parents raising children with ASD, shedding light on their unique perspectives and contributions towards creating a more inclusive society. The findings highlight the importance of understanding the voices and perspectives of parents in promoting inclusive practices resulting to better policies. Parents described their personal parenting journey as filled with various emotions including fear, guilt, and confusion. They also shared their strategies for adapting and coping with the challenges they face, such as seeking support from friends and family. Furthermore, the study emphasizes the importance of family, community, and social support for parents of children with ASD. Parents highlighted the crucial role of these support systems in helping them navigate the complexities of raising a child with special needs.

Keywords

  • education
  • autism
  • autism spectrum disorder
  • lived experiences
  • inclusion
  • inclusive education
  • special education